Democratizing clinical research

What is the role of the patient in setting the agenda for  clinical research? Two Swansea University researchers, Keith Lloyd and Jo White, have  argued the importance of involving the patients since they are often  the ones with most at stake. Priorities can not be set just upon the basis of patients’ opinions, but there is a need to involve them.

The James Lind Alliance (JLA) Priority Setting Partnerships in Oxford, UK, tries to ‘harmonize the perspectives of patient and clinician’, by bringing them together to “identify and rank questions about the effects of treatments for a given disease.” Lloyd & White were recently involved, as clinical academics,  in the JLA process being applied to treatments for schizophrenia. As a result of the process, they have raised many interesting and thought provoking  issues to do with clinical research.  The artcile is available online from NATURE.


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